Danni Latham, 21, from Walsall in the West Midlands, is mum to two-year-old Isla. When she was just eight weeks old, Isla was diagnosed with Epidermolysiss Bullosa (EB), a rare skin condition which means she was born without skin on her hands and feet and now results in blisters forming all over her body.
However, Danni has now spoken out about her heartbreak after receiving criticism from strangers who thought her child's blisters were caused by bad parenting and burns.
Danni told the Mail Online: 'People have stopped me in the street and asked "what have you done to her? Has she not worn suncream? She looks burnt?" It's so hurtful.
'We have been battling every parent's worst nightmare, baffled doctors, no cure and cruel taunts from disapproving strangers.'
There is no known cure for the condition, which is diagnosed in one in every 17,000 children. Isla was given just weeks to live by doctors after she was born, as 40 per cent of babies with the condition die within a year of birth.
She added: 'When I was told there was no cure for my daughter's skin condition, I was beyond devastated.
'Just hours after she was born her body was turning into one big blister. I cried and begged them to help her.'
The doctors said that Isla was missing a layer of her skin, which causes more friction and makes the skin easier to blister. Isla is currently being tested to determine the cause of her EB, but the family know it isn't genetic.
Danni added that she has to clean and dress the blisters every morning to prevent infection as well as sometimes popping blisters in the middle of the night, while her daughter is sleeping.
Danni has since been helping raise money for her daughter's treatment and been sharing her story to help raise awareness of the condition.
She said: 'I want to help to try and find my girl and all the other innocent children something that may just help the day to day pain and nightmare of this condition.'