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Living with nasal polyps

Nasal polyps are one of those things that aren't dangerous or life-threatening, just very annoying! From the age of about 16, I felt like I had a blocked nose. I've got a slightly wonky nose anyway, so I put it down to that for years. But when I got to my late 20s, I was fed up with the feeling and went to my GP. He referred me to a specialist, who examined me and found the nasal polyps. There were a few of them, quite high up in my nose towards my eyes. No wonder I'd been feeling like I had a blocked nose!

I had to wait a year for the operation to remove them on the NHS and, in the meantime, my doctor gave me a spray to use. It calmed the polyps down, so that I didn't feel the need to blow my nose so often (that's one of the things that makes it worse). The operation was done under a general anaesthetic, and I was in hospital for two days. Afterwards, I didn't notice an immediate improvement. But it did happen gradually.

I feel about 60% better than I did before the operation, now. I've been told the polyps might grow back but, in the meantime, it's just such a relief not to have a constantly blocked nose!
Rhiannon Todd, 35, Birkenhead

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Sharpy

continued....... I have found sinupulse elite advance nasal sinus irrigation system on amazon at &#163119.99 & has some very good reviews. I am going to buy as its seems to be a condition that we will need to live with unless they find a perminent cure, I will let you know how it fairs!

Sharpy

I have suffered for the past year with lack of help or support from my GP Surgery. I was diagnoised with asthma little over a year ago but also complained of general head cold symptoms & loss of smell & taste. I continued to ask for allergy tests without any joy & was told that ''we don't do that, you'll just have to figure it out yourself'' (Very helpful!). Whilst attending the asthma clinic at my local hospital I explained what my GP had said & was sent for bloods that day. I have since been told I am highly allergic to dust, grass & pet hairs & the doctor at the asthma clinic finally got me refered to ENT. I too am on a short course of steriod tablets & steriod nasal drops but think surgery is inevitable. Since I have been officially diagnosed, I have found sinupulse

Andrea B

Yeah, my pharmacist has told me several times that Betnesol N is for short term use only, yet I have been using Betnesol N for 7 years now with a yearly break of only 1 to 3 months. The only reason the break ocurrs at all is because it is unavailable between February to May every year due to manufacturing issues. The worst part for me is night- time, I manage to sleep for about 3 hours in total, 20 mins here and there with lots of nose blowing and water drinking in between naps. I read in Evolution Ezine that cottage cheese and flaxseed oil can cure cancer!!! Surely ther's an easy solution rid us all of this misery. Oh, I also suffer with Asthma and am allergic to Asprin.

Steve A

Hi all, a lot of you have pointed out that you are allergic to Aspirin, and have Asthma! Well, having nasal polyps as well you are all probably have a condition called Samter's Triad. The Triad being all three mentioned. It's where you are allergic to salycic acid the chemical in Aspirin and it's in a lot of food aswell, mainly vetetables, beer and wine. There is a treatment where you can get desesitized to Aspirin that stops all these symptoms in most cases, I would advise you all to go and see an immunologist to see if they can do this, if not, find one who can. First look on the net for Samter's Triad and Aspirin desensitization and you will get all the info. I am doing it soon, and if you need any more advice send me a message at steve.attard1@gmail.com. I hope this helps and good luck all. Steve.

Steve A

Hi all, a lot of you have pointed out that you are allergic to Aspirin, and have Asthma! Well, having nasal polyps as well you are all probably have a condition called Samter's Triad. The Triad being all three mentioned. It's where you are allergic to salycic acid the chemical in Aspirin and it's in a lot of food aswell, mainly vetetables, beer and wine. There is a treatment where you can get desesitized to Aspirin that stops all these symptoms in most cases, I would advise you all to go and see an immunologist to see if they can do this, if not, find one who can. First look on the net for Samter's Triad and Aspirin desensitization and you will get all the info. I am doing it soon, and if you need any more advice send me a message at steve.attard1@gmail.com. I hope this helps and good luck all. Steve.

pete

Hiya guys, nasal polyps yea they drive me mad, everywhere you go tissue in your pocket or in my case kitchen role. I have had 5 opps so far last time i went 7 months ago my smell and taste came back first time in ten years, i put a stone on in weight i could not stop eating, oh and to be able to smell even the worst of smells was so great, but it has gone again, SO ANY WAYS HERES SOME TIPS, I tryed the steroids after a while they just seem to make matters worst so i try to use the drops not to often,diet i have tryed and not any joy there, hydrogen proxide no no that not a very good idea,gave me a ringing in the ears, for me to stop a full on sneazing or streaming nose is a cup of nettle tea, give it 20 mins and it does the trick. I am a builder so i work outside, i have tryed snuff to finnish them off, and i have tryed pulling them out with tweezers but they just break up and grow again and sometimes you will get an infection,burning them again a no no, i am currently growing my own stinging nettles and i am going to start having 2 or 3 cups a day to see what happens. Moving house is also a good one and no furry animals in there,or smoke,and keep clean no dust that helps. Prednisolone works but it not good for you,I usually have these just before i go on holiday so i feel good for a few weeks no tissues. Any way do not give up keep trying and one day between us all we will find a way.

Dominic Kelly

regarding Debra's comment about her nasal polyps shrinking in Lanzarote - that might indicate an underlying fungal problem or, more likely allergy to dust mites. These little creatures need relatively moist conditions and don't live in countries where high air temp is the norm. A number of studies have indicated allergy to be at the root of atleast 70% of chronic nasal polyps and related problems.

Edward

I share everyone's frustration with polyps and the lack of a simple treatment. I had surgery 3 years ago, only to be told immediately afterwards that the polyps would grow back! Surely there's got to be a better way of dealing with them than expensive - and risky - surgery? I've suffered from allergies for years and think that identifying the allergies could be the first step to stopping the re-growth of polyps. Or if it's the adrenil glands that produce the body's natural steroids, maybe that's the source of the problem. I just wish that medical research could get to grips with what is an unpleasant, anti-social,miserable condition.

malachi mc cullagh

i come from omagh here in n.ireland and have have had five ops to remove polyps.first when 15 then 16 then 18 gave up until 33 then again 40 when i could stick it no more..now 44 and feeling good touch wood.told that small ones were back a few years ago but nothing yet too bothersome.last time was first time i had laser surgery on them so perhaps that is working.would go again definitely if necessary as the relief albeit limited in time is absolutely immense.awful bother when younger snogging as i would be absolutely gasping for air.......go for the surgery i would say

Debra Lawrence

I have had nasal polyps for 10 years now, I am 36 years old. They are quite big at the moment and I am suffering at night. I also have aspirin allergy and asthma. It is really miserable sometimes. I really do not fancy surgery at all, and since so little is known about polyps, and as stated above, polyps seem to return frequently, I just put up with them. I have no sense of taste or smell at all, it really is miserable and I wish they would go away. I have had periods where the polyps have completely shrunk for a couple of weeks and my sense of tatse and smell returned. This happened once when I went on holiday to Lanzarote. I have no idea why the polyps disappeared at this time. It is a complete mystery. I wish more was known.

Becky Lothian

I too have suffered from thes blasted polyp things in my sinuses for 20 years - have had 6 operations to remove - most recent one was in Feb this year and now suffering again....probably grown back. I have lost so many jobs due to congestion, pain, infection, problems with ears. I am my wits end and if anyone can help - please let me know. Nobody seems to understand what its like living with these.

Tomy

I have suffered Nasal polyps for 4 years now having had 4 operations which gave me comfort for 3-4 months but they always returned with a vengence. I really wish there was some miracle cure as this ailment spoils one's quality of life. I took Prednisolone as a temporary cure with nasal steroids just to enable me to have some sleep since my nose drips secretions which is not just embarrassing but terribly annoying, Wiping my nose all day and night with endless amounts of tissues. This task makes my nose sore and feel at a loss, my next venture is flying to Singapore to see a specialist who will use navigational equipment to clear my nasal airways now they are nearer my brain, thus' spliiting my septum with the pressure from the polyps. I also have asthma 'being told by the Dr who prescribed me Aspirin' this triggered of both symptoms because I was allergic to the drug. If anyone has any advice on how to help my complaint I would most welcome their correspondence. Many thanks

dAVID hEMMETT

I have had nasal polyps removed by surgery no less than four times now and they have regrown each time after a period of a couple years. They are back again and I am due to see the consultant tomorrow when I shall do my utmost to get him to treat them non-surgically if possible [steroid drops?] Uncomfortable as they are I do not want to go through any further operations, especially in the the light of possible infections [C-DIF, MRSA etc] that are reported to be present in my local hospital.

Lee Jones

I have had polyps removed three times by surgery and they usual return after 3-4 months. I have taken Prednisolone oral steroids and Betnesol drops in between surgeries and found these to be effective, returning full pain relief and regained smell/taste after onlynfive days of treatment. The only problem is these medications can not be taken long term, so I usually suffer for six months of the year. I hope that a miracle cure can be found for these troublesome fleshy sacks very soon.

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